Rare on the Red Carpet | Hannah Meddaugh
My name is Hannah Meddaugh and I am an undergraduate student majoring in genetics at the University of Wisconsin-Madison, and I hope to pursue a career in genetic counseling after graduationI am...
View ArticleRunning on Stories | Emma Rooney
Emma Rooney: Running on Stories I first took-up the role of storyteller as a child while playing school in the basement, during the summer holiday with my younger sister. I’ve maintained the role until...
View ArticlePain Management | Dr. Harry Gould
Patients face a world in which most people, including physicians and healthcare providers, policy-makers and even their own families, understand very little about their experiences with pain. As a...
View ArticleHave You Met…| Carri Levy
Carri Levy is the producer behind Lifetime TV’s “The Balancing Act” and “Behind the Mystery: Rare and Genetic” Like most people in the rare disease community, I found myself searching for an answer to...
View ArticleNarcolepsy Boldly | Julie Flygare
I’m Julie Flygare, the founder of Project Sleep, a narcolepsy spokesperson, published author, blogger and runner. At age 24, when I was diagnosed with narcolepsy and cataplexy at the beginning of my...
View ArticleRARE on the Red Carpet: Gillian Anderson
Gillian Anderson is a much loved stage, television and film actress who skyrocketed to American fame in the 1990s. She perhaps best known for her roles in TV shows including ‘The X-Files,’ and...
View ArticleThe Employment Plan | Can You, Should You, Dare You? Your Life Post-Illness
Once the acute phase of a chronic illness passes and you have some sense of stability, the desire or need to get back to work usually arises with it. It’s easier to return if your leave has been...
View ArticleRARE on the Red Carpet: Gillian Anderson
Gillian Anderson is a much loved stage, television and film actress who skyrocketed to American fame in the 1990s. She perhaps best known for her roles in TV shows including ‘The X-Files,’ and...
View ArticleRare on the Red Carpet | Hannah Meddaugh
My name is Hannah Meddaugh and I am an undergraduate student majoring in genetics at the University of Wisconsin-Madison, and I hope to pursue a career in genetic counseling after graduationI am...
View ArticleRunning on Stories | Emma Rooney
Emma Rooney: Running on Stories I first took-up the role of storyteller as a child while playing school in the basement, during the summer holiday with my younger sister. I’ve maintained the role until...
View ArticlePain Management | Dr. Harry Gould
Patients face a world in which most people, including physicians and healthcare providers, policy-makers and even their own families, understand very little about their experiences with pain. As a...
View ArticleHave You Met…| Carri Levy
Carri Levy is the producer behind Lifetime TV’s “The Balancing Act” and “Behind the Mystery: Rare and Genetic” Like most people in the rare disease community, I found myself searching for an answer to...
View ArticleNarcolepsy Boldly | Julie Flygare
I’m Julie Flygare, the founder of Project Sleep, a narcolepsy spokesperson, published author, blogger and runner. At age 24, when I was diagnosed with narcolepsy and cataplexy at the beginning of my...
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